Lymphedema, Lipedema, & Dercum’s Resources
Lymphedema Resources
Recommended Products for People with Lymphedema
Informational Flyers & Papers
- Healthy Habits for Lymphedema
- Lymphedema Risk Reduction Practices
- Lymphedema and Air Travel
- Lymphedema and Exercise
- Screening and Early Detection of Breast Cancer Related Lymphedema
- Breast Reconstruction Options If You Have Lymphedema
- Screening & Measurement For Early Detection Of Breast-Cancer-Related Lymphedema
Recorded Online Educational videos
Facebook Groups
Books
- Coping with Lymphedema By Joan Swirsky, RN and Dianne Sackett Nannery
- Lymphedema: A Breast Cancer Patient’s Guide to Prevention and Healing By Jeannie Burt and Gwen White, PT
- Living Well with Lymphedema By Ann Ehrlich, Alma Vinje-Harrewijn and Elizabeth McMahon, Ph.D.
- Overcoming the Emotional Challenges of Lymphedema By Elizabeth McMahon, Ph.D.
- Lymphedema: Understanding and Managing Lymphedema After Cancer Treatment American Cancer Society
- Lymphedema Management: An Essential Guide to Living with Lymphedema – Understanding the Cause, Recognizing Symptoms, Learning to Manage, and Identifying Treatment & Therapy Options. By Mia Fin
- 100 Questions & Answers About Lymphedema by Thiadens , Stewart, & Stout
Advanced Lymphedema Books & Articles
(for Professionals or People Wanting Highly Detailed Information)
• Supermicrosurgery for the Treatment of Lymphedema. Cleveland Clinic
• Physical Activity and Lymphedema (The PAL Trial): Assessing the safety of progressive strength training in breast cancer survivors. K. Schmitz, et. al.
• Lymphedema: A Primer on the Identification and Management of a Chronic Condition in Oncologic Treatment. By B. Lawenda, E. Mondry, P. Johnstone.
• Lymphedema: Complete Medical and Surgical Management.
• Lymphedema Management: The Comprehensive Guide for Practitioners (Complementary Medicine). Joachim Ernst Zuther
• Principles and Practice of Lymphedema Surgery. By
• Lymphedema Liposuction with Immediate Limb Contouring. By Chen, Zeng, Hawkes, et. al.
• Lymphedema and Obesity: Is There a Link? By B. Mehrara and A. Greene
Lipedema Resources
Recommended Products for People with Lipedema
Books
- Lipedema – The Disease They Call FAT: An Overview for Clinicians by
- Lymphedema and Lipedema Nutrition Guide: foods, vitamins, minerals, and supplements by Lymph Notes
- Lipedema Treatment Guide: A Certified Lymphedema Therapist’s advice for her clients with lipedema by Kathleen Lisson
- Swans in Disguise: You are not fat you are sick – It is lipedema by
Research Articles on Lipedema
Lipedema: a relatively common disease with extremely common misconceptions. Buck DW, Herbst KL.
Tumescent liposuction in lipoedema yields good long term results. SchmellerW, Hueppe M and Meier-Vollrath I.
Lipoedema: from clinical presentation to therapy. A review of the literature. Langendoen SI, Habbema L, Nijsten TEC, et al.
Liposuction is an effective treatment for lipedema – results of a study with 25 patients. RapprichS, Dingler A and Podda M.
Lipedema: Diagnostic and Management Challenges. A. Peled and E Kappos.
Lipedema: an overview of its clinical manifestations, diagnosis and treatment of the disproportional fatty deposition syndrome – systematic review. Forner Cordero I, Szolnoky G, Forner Cordero A, et al.
First Dutch guidelines on lipedema using the international classification of functioning, disability and health . A. Halk1 and R. Damstra
Dercum’s Disease Resources
Dercum’s Disease is a fat disorder that is related to lipedema. It is typically characterized by painful fatty lumps under the skin that may be accompanied by swelling. The lumps are usually present on the upper arms, upper thighs, and on the torso.
Also known as adiposis dolorosa, Dercum’s Disease is more commonly found in women than men. Although the exact cause is unknown, it has been found in people who have a history of long-term steroid use, but this is not always the case.
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Learn more about Dercum’s disease on the FDRS website, including treatment options.
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Check out the FDRS YouTube channel and revisit sessions from FDRS 2019, several are specific to Dercum’s disease.
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Learn more about Rare Diseases at Global Genes and National Organization for Rare Disorders (NORD).
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Infections preceding the development of Dercum’s disease. K. Beltran, R. Wadeea, K. Herbst.
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Mark April 4 on your calendar for Dercum’s Awareness Day and look for more information from FDRS.
